My sons Jack and Hunter were diagnosed with a rare syndrome called MPS IV or Morquio syndrome. There is currently no cure for this syndrome. It affects mostly bone structure resulting in many surgeries. Can also affect organs including liver, spline, and heart. At this time they should be able to live into their 50s or 60s but because of the organ problems may cause a shorted life span.
Also visit their website: jackandhunter.wordpress.com
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